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Sickle cell cure is real, as this Kansas patient proves
Intense pain. Fatigue. Repeated infections, emergency room visits and hospitalizations.
Desiree Ramirez endured them often — until she became the first adult cured at a Kansas hospital of sickle cell disease.
Bone marrow stem cells donated by a stranger rescued Ramirez at age 23. Now, a year past transplant, with follow-up doctor’s office visits slowly receding, she finds herself eagerly anticipating a normal life, one without the inherited blood disorder that affects 70,000 to 100,000 Americans, mostly people of African heritage.
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This platform is made possible through a partnership with the Sickle Cell Disease Association of America, Inc. (SCDAA) and its member organizations. SCDAA's mission is to advocate for people affected by sickle cell conditions and empower community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure.